Before I had hPOTS, I used to get up every day at 5:30am, take a shower, and spend another 45 minutes styling my hair, putting on make up, dressing, and doing all of the activities it took to groom myself for going out of the house for work or otherwise. Some days, after work, I took another shower and went through the whole process again if I was going out that evening. I loved the relaxing activity of showering and the feeling of being super fresh and clean. And I'm not young and not naturally beautiful. I'm not one of those women who can run a brush through her hair, put on some lip gloss and be ready for prime time. Getting ready for public display took TIME!
Enter hyperadrenergic POTS, and BAM! Oh how things have changed. Grooming has now become a dreaded, exhausting, laborious activity that sucks all the energy and life out of me. My routine now is that I shower in the evenings and not every day. After I shower, I drink a couple glasses of water and lay down for an hour before I can get up again or sometimes I don't get up until morning. And instead of the long hot pleasant relaxing and enjoying experience it used to be, the shower is now a frantic race to just get it done so that I can make it without collapsing or having to endure hours of vertigo.
That is step one of my new grooming routine.
Here are the other steps I go through when I have to go out. I call this the "Dysautonomic's Basic Guide to Grooming":
1. Shower is done in the evening as described.
2. Drag self out of bed in the morning, wash face and plug in the curling iron.
3. Lay back down for a while.
4. Brush teeth and curl hair.
5. Lay back down for a while.
6. Put on make up and get partially dressed.
7. Lay back down for a while.
8. Finish dressing.
9. Lay back down for a while.
10. Drag self up to leave the house. Keep fingers crossed that socks match and that make up is actually on and that clothes are zipped and buttoned (sometimes things do get overlooked!).
11. Repeat as needed when going out in public.
Sometimes I think that perhaps I should just give up on grooming and not do it at all. That way, my "look" will match the way I feel AND I will have more energy because I wouldn't have wasted it all on grooming! I will be more productive at work and be able to attend more social activities. :-) Of course, nobody would want me at work or at any social event if I stopped grooming (and my husband probably would not want to bring me to anything) but that's beside the point...
Just in a ranting mood tonight. Plus I need to take a shower. Sigh...
Wishing all of you living with dysautonomia, the strength and energy to get through the normal things!
A collection of my personal musings and resources about Hyperadrenergic Postural Orthostatic Tachycardia Syndrome (hPOTS), a rare form of dysautonomia, a disorder of the autonomic nervous system. There is very little information about hPOTS available. I want to share my experiences, hear from others living with hPOTS and other illnesses, and provide a collection of resources as I find them.
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